Tuesday, September 15, 2009
Disco Bowling and Fake Tornadoes
Continued..day 3 of 6 till Von's big giving day...
Von is in Mexico tonight and is getting updates about the large sum of cash he will get to hand over to Josh on Sunday. Thank you all for the love and support. I was completely knocked off balance today with your generosity.
Von remembers this past year's doctor's visits, the early morning drives for an emergency hospital visit with fever and shakes. He can tell you how to vomit without crying and how to hold still and breathe into the Darth Vader mask while they do a spinal tap.
He remembers the blue mask he wore everywhere, the leg pain and braces, the medicines, the shots and the embarrassment of the curious stares as people realize eyebrows AND hair are missing. (He still asks me about the girl in the church nursery who said she didn't want to play with him because he was missing hair.)
Von remembers Ellie Willeart his peer in age and cancer battling buddy and remembers her funeral. She and her family are amazing examples of grace and Von will remember Ellie forever.
But Von also remembers bowling in blue disco lights. He can tell you how to make a tornado on stage from seeing the Wizard of Oz play. And he knows from shaking the scarecrow's hand afterwards that stage makeup is creepy up close.
He remembers being the reason HopeKids was sending him and his family to see the movie Up and can tell you it felt special. He can also show you how to yell at the ball game to get the noise meter on the scoreboard to go up.
He knows what it feels like to wear a 'free pass' wristband from HopeKids to the mall of America and the joy of handing these out to your sisters.
Now that we are through the rough part, we want to exercise a grateful heart and help make it possible for HopeKids to keep sending other little boys and girls and their families on normal little outings. You can make a small or large tax deductible gift here.
We are humbled by your overwhelming response. Thank you! We will be sending you a little special gift from Von. (Sorry, no fake dog poo!)